Oh great. Here is yet another blog article trying to tell me how to live with pain. What does this writer know? This writer lives with 6 invisible diseases…and all of them have caused pain. Hereditary Hemochromatosis (iron overload), Porphyria Cutanea Tarda (sensitivity to light, skin blisters), Hashimoto’s Thyroid (autoimmune…caused extreme stomach issues), Epstein-Barr Virus (felt entire vertebral column flare-up), Depression from pain, and Fribromyalgia (when anyone touched my skin, it felt like a slap).
Over the last three years, the pain continued to get worse. I opted not to be on the pharmaceutical drugs due to the fact that HH is a genetic condition and no doctor could tell me for sure if the drugs would make my liver worse. So pain it was. But I wasn’t going to stop there. I continued my search for things to help me cope that were going to work with my body naturally. What did I find?
- Turmeric milk. Turmeric has been used in India for thousands of years for its anti-inflammatory properties…due to the active compound curcumin.
- Relief. Building on that, I take this product because it has ingredients such as glucosamine and chondroitin, but even more than that it also includes turmeric root extract, as well as yucca root, which has long been used for osteoarthritis as well as inflammation of the intestine. Ah-ha. Hmm. Remember my stomach pain before? Better within weeks of getting on this.
- Restorative yoga. Yoga has been shown to decrease the stress hormone cortisol. Do you think I might have been stressed when I moved if my whole body felt like it was on fire? Yes. Just a little. The difference in restorative though, is that you get to use comfy bolsters, blocks and blankets. So we made little nests, and sat in that pose for 5-15 minutes depending on what it was. I had a hard time at first, but learned to let go of my expectations of what my body used to be able to do. The poses became second nature.
- Vinyasa yoga for back pain. I graduated to Vinyasa…honestly, only because a friend pulled me in the direction my mind was afraid to go. When she suggested restorative, I gave it a try. When she said that I could do Vinyasa and possibly teach one day, my mind shut her down due to the pain. “She has no idea how much moving hurts.” Said the mind…but the heart wanted to get better. Thankfully, it’s pretty strong, and said “Let’s do this thing!!!” And so I did. Almost 200 hours later…the girl on fire. Literally.
- Meditation-like thoughts. When I felt myself go into the dark place of pain, I would literally stop and say things to myself like “I am breathing in. I am breathing out.” I didn’t come up with this on my own. I read part of a Thich Nhat Hanh’s You are Here, except at the time, I didn’t want to be there. ha. So I never finished it. But it did teach me to focus my breathing.
- Friends checking in on you. This part became difficult. Not many people were in this category. When you are in pain, people slip away. They do. It’s not their fault, but it is in the human nature to be uncomfortable when you don’t know what to do. Most don’t climb down in the hole with you. Watch this short video to get the full meaning of “The Power of Empathy”. Rarely can a response make something better, says Dr. Brown, what makes something better is a connection.
So my friends, I leave you with my connection to you. I am in the hole with you. I have climbed down there. I will hug you. I will give you that love and connection to your pain, but the next step is on you.
Hi friends, if you are new over here and want to read my story, you can use the side button to go all the way to some of my first posts. If you want to really “hear” my story, the recording of the Talk Radio Blog show is on the post before this one. It’s your choice. I know it sounds long, but I talk about invisible diseases as pertain to me, so it might be interesting to you. Lastly, I use a method of clean eating…no processed foods, no fast food, not white sugar, no flour, etc. And supplements to stay healthy. See the tab on the blog here called Vitalize You and it basically tells you just a few of the products I use. I opted not to be on Lyrica or Cymbalta due to my research.
Next up, I will be extremely busy with my new yoga teacher training classes and more to come on that I’m sure. I am using these methods instead of “traditional” and so far I have lost 18 pounds and gone down 3 sizes just from getting rid of the toxins that my body was reacting to with autoimmune. I have gotten rid of the bloat and the IBS symptoms I used to experience from food “attacking” me. I still have my bad days…as does everyone, but I am making progress.
Feel free to message my FB page Vitalize You with supplement/weight loss questions.
So this week has been interesting with the launch of The Wellness Universe website…being asked to write for all kinds of different pages. And getting a phone call that shall remain a mystery for now. But this, this is not going to be kept a secret…
Authoress Tonya Wilson of “The Time Is Now” sheds light Issues Of Addictions, Recovery & Deliverance. On Sunday, January 25, 2015 @ 7:00 PM EST. If You Need Inspiration, Answers, or Support, The Time Is Now! Her Guest Panelist This week is, AIMEE H….Aimee H. is a fighter of invisible diseases (namely her own). She is the Writer of the Blog “The Burned Hand”. She is also the Owner and Operator of Vitalize You. Both are now a part of The Wellness Universe Directory. Join us as she shares an all natural approach to wellness and recovery, The recorded playback is here blog talk radio.
I have connected with many people over the years and I feel most strongly connected to people with illness. But recovery can be many things to many people. It can be drugs, alcohol, pain killers, but it can also be recovery from internal conflicts. Depression, fertility issues, things people cannot see and in no way shape or form have the right to judge your path. So please take a moment to listen in if you have time. If not, I will probably come back and drop a link in this post later with the recording. We’ll see how I sound first. Wink. P.S. Ihaveneverdonethisbeforesodontbejudgingme
But I know you will be cheering me on!!
I am happy to be part of The Wellness Universe directory which is launching tomorrow at 11:11a.m. Both my blog here and my page Vitalize You are members! I have come a long way in a year, but I am not done yet. Wellness is an entire process. Spiritual, Social, Physical, Occupational, Environmental, Intellectual, and especially Emotional all fall under our wellness directory. You might just recognize a blog writer!! I am passionate about changing my life. I have changed my body by finding my triggers and I am great with working with others who have autoimmune issues…the problem is, they really have to want to change as well. Things that are worth doing are sometimes not easy…I know that. But if you read all of my history you will realize that if I can do this as bad off as I was, you can do this too!!
Whew…get ready. If you are bloated, in pain, have fibromyalgia, autoimmune, hashimoto’s thyroid or anything similar, consider talking to me through my Vitalize You page. I am here to help. I have recipes on Pinterest, and plans that can actually help you begin to make the changes on your path to wellness. Just let me know! Happy to be part of the launch tomorrow!!
Dear support system,
You are not crabs and for that, I thank you. Insert obvious, what is Aimee talking about, thought. I have been fighting extremely hard to get out of the bucket. Each time I get closer, a thought pulls me back down. Just like crabs in the bucket. This metaphor was used this weekend. Individually, the crabs could easily escape from the pot, but instead, they grab at each other in a useless competition which prevents them from escaping and actually making it out. Hmmm. Sound familiar?
So I took this and spun it while reflecting on what Warren Barfield said. You see my problem is sometimes all it takes is one crab. Just one. A doctor telling me that there is no cure for autoimmune, fibromyalgia, etc. A friend telling me no, they are not interested in my business, which is their choice by the way, or someone speaking negative thoughts in my ear about how I won’t be able to grow my business. These thoughts become like crabs in my head and they pull me down. Over and over again. Until now.
I am going to succeed in my personal business, Vitalize You, and I am going to change lives. I am not promising you anything you can’t already achieve, but I am promising you guidance on your journey. So to all my customers and fans, thank you for believing in my adventure. For lifting me out of the bucket when I needed it instead of pulling me back down…because believe me, I do enough of that on my own.
See tab Vitalize You for more about why I started my business.
So I had a post all ready to go yesterday in my head…but here’s the thing. I feel like the only motivational thing I did yesterday was pry myself up off the couch, take a shower and say to myself, self, get out the door to yoga…ignore that it is cold and rainy and extremely dark. JUST go. Then I said to my husband, “If I tell you I don’t feel like going to yoga because I ache/hurt, tell me to go anyway. No matter what I say.” I am positively sure this will come back to haunt me.
So I knew I made the right decision when I started to release the pain in my neck, shoulders, lower back and hips. I absolutely love restorative yoga for my aches and the slow, no pressure, use as many props as you need to hold the pose feeling goes with fibromyalgia. I am encouraging as many people who need healing to go to this type of class. By healing I mean any kind of healing. Seriously. But you have to go all in. You can’t try to fool yourself. You can’t make excuses. It doesn’t work that way.
So I have my calendar set up with my appointments. I have my yoga nights on there…and soon my yoga weekends. I can’t let my mind stop me from doing something I know is good for my body. I can’t let weather, aches, pains, and any other excuses stop me. I have made a decision and I have a goal. I have to release the outcome as I have done my part. Small steps people. Small. Steps.
Happy Blogiversary to us! Without you reading my posts, there wouldn’t be a blog. Ok, that’s not true, I would be lonely, but the truth is, I write for me as I’ve always said. It heals something deep down inside me that was broken the day I found out about my first diagnosis of an “invisible disease” named Porphyria. So without further ado, let’s go back there, shall we? Cue psychedelic swirly things. And poof! We are in 1997. That was the New Year’s Eve all the crazy decided it was time to come out. It started with tests coming back odd…and I thought my life was just beginning with my soon-to-be husband back then. Then I get told about the cervical dysplasia and I admit the word pre-cancerous cells is scary. It just is.
So as we move into 1998, the year does not get any better at that point. I find a man I am madly in love with and now I am falling apart…in more ways than one. That’s when the blisters started. Blisters. Are. Bad. These were not your ordinary ones mind you, well have a read over there at my link. I’ll wait. Humming music in my head. Okay, back on track. See I told you. They used LATIN words. Latin. On me. Who did they think they were dealing with?? I had a B.A. in English and was a researcher. Of course I was going to find out what they trying to hide. And it wasn’t going to be good…but I already knew the that the second she whispered to the other doctor.
Anyway, I consoled myself back then with the fact that out of all the porphyrias, mine seemed to be the less likely to cause internal pain. I didn’t think about the psychological at the time. The fact that I was such a strong person and this was slowly killing me inside. But, I had a wedding to plan so let’s get to the rest of 1998, and how it lingered on. You will want to read that link over there again. I’ll wait for you to catch up because that one includes everyone’s favorite subject. Vampire lore (hint, I do not sparkle, but yes, the burning part is real). I have been told I am ageless. There is some truth to that part of the myth as well. I do get my blood taken for life. But I would not wish this on even the most fervent Twilight fan. P.S. that vamp is dumb. My man Damon Salvatore is much better…in fact any vampire is better than Mr. Sparkle. Just my opinion.
Okay, back to me getting married at this point in my life with pints of blood taken every week, no sunlight, no birth control, no alcohol, and blisters still present. Did I mention my skin burned? Burned all over, but especially my hands. Ding, ding ding! See how I came up with the quote title?? It made perfect sense. Love of literature combined with the horrible stuff going on in my body. Poof. Perfect title. So let’s finish up remembering why I started this blog by reading this post the Summer of 1998. And this my friends, is why I need to finish my book. I believe my story can and does help others feel less alone in this world. And this was just the beginning.